Climb to the Top with the National Multiple Sclerosis Society

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2 Responses

  1. hat a great event 🙂 congrats on reaching to the top in heels!

  2. Neil says:

    There is no-one that can tell you how your MS will behave in the fuutre, but a rule of thumb is that the first 5 years after your first attack will be an indicator of how the MS will affect you. Nothing is written in stone, though, aggressive MS can suddenly turn dormant and mild MS can suddenly become aggressive.The way I see it, we, who are diagnosed with remitting-relapsing MS, live with a sword over our head. We don’t know IF it’s going to fall and if it falls, we don’t know how severe the damage will be, but then again, there are no guarantees in life, and there is no point worrying about the what ifs .My advice to you is to read up as much as you can about MS. It helped me immensely after I was first diagnosed, because the average person’s knowledge about MS is usually based on worst case scenarios. These are what the media focus on, these are the most visible when you walk down the street.For your own sake, I feel it is important to come to terms with the worst case scenario, but it is equally important to realise that many of the MS statistics include old data that were harvested before the disease modifying drugs were developed. Today MS is not considered to have any effect on the sufferer’s lifespan, and many of people with MS lead normal or near normal lives, just 15% of all MS sufferers end up in wheel-chairs.Talk to your neurologist, don’t be afraid to ask questions, advice, anything at all. Many problems can be addressed with medicine, and if you have relapsing-remitting MS, the earlier you start treatment, the better. I started on Avonex right after I got my diagnosis and both the neurologist I’ve had, have independently of each other said that the early treatment is most likely the main reason why I’m doing this well.MS is not a death-sentence and it does not necessarily mean that your life will change significantly either. The most important part is to focus on what you can do. All depending on your symptoms, you might still be able to teach for many years to come.Take your time, try to relax and digest the diagnosis, do what feels right for you and try not to be too affected by well-meaning friends and family, if yours are anything like mine, they will be crying, treating you as if you have one foot in the grave, finding various articles on alternative treatments, and telling you about all the other MS cases they’ve heard of. Natural reactions, but not always helpful to the newly diagnosed.You might want to look into joining a MS group. I didn’t do so myself when I was first diagnosed, but I know it has helped many.All the best to you. Feel free to contact me if you have any questions or just need to talk. Was this answer helpful?

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